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A Sample of Weekly Updates Regina
has providing a mini-chronicle of my treatments and
condition throughout my treatment and recovery period. Four of her messages
appear below.
From: Regina
>To: Friends of Joe
>Subject: Chapter Two
>Date: Sun, Aug 12, 2001, 3:10 PM
>
> Hello Everyone,
>
> For those who were not able to view the pic of Joe and granddaughter
> Cheyenne: Go to http://www.successfulrestaurantdesign.com/two_baldies.htm.
I
> guarantee a smile.
>
> We're launching into a new chapter of Joe's cancer treatments. Last
Thursday
> he had a double-whammy procedure in Boston: a biopsy of the cancer on his
> tongue and the installation of a PEG feeding tube in his stomach. The GREAT
> news is that his cancer appears to have shrunk 90 to 95 percent. However,
> the experience at Bringham & Women's hospital left a lot to be desired.
Like
> no pain meds for six hours and a nurse who had zero experience with a
> feeding tube. I won't go on. Happily, we fled the hospital, and the heat,
> mid-day Friday. And Joe, ingenious as ever, came up with a solution for his
> leaking feeding tube (don't ask!).
>
> Right now Joe is resting fairly comfortably thanks to pain meds, after a
soy
> drink and a bowl of kale soup for lunch. He does not have to use the
feeding
> tube until swallowing becomes difficult due to the radiation, which will
> happen in a month or so. He's on soft, bland foods due to the
surgery, but
> nonetheless gets a lot of pleasure smelling bottles of hot sauce.
>
> Joe starts chemo-radiation treatments on Monday, five days a week for seven
> weeks. We get the radiation locally, and also go to Dana-Farber in Boston
> once a week for a chemo infusion. The doctors have consistently warned us
> that this is going to get tough. The effects are cumulative, kind of like a
> bad sunburn that keeps coming on after you've left the beach. The
fact that
> Joe responded well to the chemotherapy bodes well for the radiation,
> although unlike chemo, the side effects aren't variable. But this is what
it
> takes to kill off the cancer, and we're ready.
>
> Keep those good thoughts coming, and enjoy the rest of the summer. We'll
> keep you posted.
>
> Reg & Joe
Sent: Sunday, August 26, 2001 2:10 PM
To: Friends of Joe
Subject: The Joe Glow
Just a brief update on Joe after the first two weeks of chemo-radiation.
He's doing well. In fact, his blood tests showed that his kidneys were
functioning so well that the docs at Dana-Farber gave him an increased
dosage of chemotherapy. Don't ask me to explain that one!
Joe continues to be happiest when life feels "normal." He has enjoyed
visits
with friends and family, working at the computer, and weekend excursions to
the beach for clam chowder and a little ocean fishing. Fatigue and a swollen
and sore tongue have been the primary side effects of the radiation so far,
along with a rosy glow on his neck and the bottom half of his face. He's
still eating by mouth, although soups and soft foods go down best. While he
continues to cook, he's also teaching me. I have mastered the fresh-chive
and sage omelet with soy cheese, and even as I type, he's down in his office
compiling soup recipes for me.
Talking has become difficult for Joe, so I'll be answering the phone from
now on. If you get the answering machine, please leave a message. Don't
hesitate to e-mail him directly at jfdurocher@mediaone.net.
There are five more weeks of chemo-radiation to go, and I'll e-mail another
update in a few weeks.
Not a day goes by that we don't count our blessings and among them all of
our friends, colleagues, and family who are rooting for us.
Reg & Joe
At 09:27 AM 09/29/2001
>Hi Everyone,
>
>It has been a while since the last "friends of Joe" update,
because after
>the terrible events of 9/11, it seemed almost frivolous to communicate about
>one person's struggle to survive. Our sympathies to those of you who lost
>friends or loved ones.
>
>On that day, Joe and hundreds of others were on the chemotherapy infusion
>floors at Dana-Farber Cancer Institute, watching the unthinkable unfold on
>television as the poison pumped through their bodies. Joe says that the wave
>of feeling was almost overwhelming: so many people with a terrible disease
>felt like they were the lucky ones, because they were being given a chance
>to live.
>
>Joe continues to do amazingly well under the circumstances, and it's a big
>psychological lift to us both that there is just one more day of radiation
>to go! That's right, the nine weeks of chemotheraphy and seven weeks of
>chemo-radiation are almost over. Not that Joe isn't beat up: he is on very
>strong pain meds 24/7, his white and red blood counts are low, swallowing is
>extremely difficult, his tongue and gums are swollen and sore, etc., etc.
>BUT, he is still eating two small meals a day, which amazes the doctors, and
>sleeps well most nights. The tube feeding and hydration is a cinch. He has
>lost weight, but only 11 pounds in the past seven weeks, and still weighs in
>at over 200.
>
>The side effects from the radiation are cumulative and expected to intensify
>over the next few weeks, but we are so happy that there will be no more
>radiation or chemotherapy or blood tests or x-rays or trips to Boston until
>October 17. Then, no doubt, a new battery of tests will be scheduled to
>access Joe's condition, etc. etc. We'll keep you posted.
>
>More than ever, in light of 9/11, we appreciate every moment.
>
>Reg and Joe
At 11:40 PM 10/22/2001
>Dear Friends and Family,
>
>We saw the docs at Dana Farber last Wednesday. The good news is that Joe is
>recovering splendidly from his chemo-radiation treatments. He's still on
>pain meds 24/7, but is slowly cutting down the dosages. He is eating by
>mouth, albeit somewhat painfully. He is sleeping less, spending more time at
>the computer, taking walks, and even starting to get in shape on the
>stationary bike. His speech is much improved, although he would not be able
>to sustain a passionate classroom lecture. Humidifiers and a constant water
>supply are his friends.
>
>But the bad news is that the docs can't be certain that there isn't some
>residual cancer on the left side of his neck, which is where the primary
>tongue tumor had spread. They still feel something there, which could be
>scar tissue or could be cancerous remnants. They say that even if diagnostic
>scans are negative, it's no guarantee, and neck cancer is particularly
>aggressive and resistant to treatment (now they tell us!). So, to get rid of
>any potential residual cancer, they do a surgical procedure that removes all
>the lymph nodes on the left side of his neck, from the edge of the jaw to
>the clavicle to the trapesius muscle to the midline of the neck. This will
>happen on November 26 at Bringham & Women's in Boston. Joe will be
>hospitalized for five days. After that, they say the recovery is fairly
>quick. There will be some muscle compromised in his shoulder and he will
>have difficulty raising his left arm over his head. Luckily, he is right
>handed.
>
>Joe has, typically, expressed this half-full philosophy: If the neck area is
>benign, that's terrific because it means the treatment was successful. If
>they find cancer, well, thank goodness, they got it out.
>
>Lest you think Joe has been doing nothing but sitting around popping
>bon-bons and watching action movies, he has put together a Web site about
>his cancer experiences, which the Dana-Farber staff is sharing with other
>patients in the clinical trial. Check it out at http://orbit.unh.edu/cancer.
>
>The community of support and friendship you've given us has really helped us
>through this, and it's great hearing back with your encouragement, kind
>words, and news on what's going on in your lives. We know you'll be
>thinking of Joe on November 26. Don't hesitate to e-mail him directly at
>jfdurocher@mediaone.net.
>
>Reg & Joe
The following email were distributed
after Joe was diagnosed with Metastatic melanoma
----- Original Message -----
From: Regina Baraban <rbaraban@comcast.net>
Date: Sunday, January 15, 2006 3:50 pm
Subject: Update on Joe Durocher
Dear Friends,
During the past nearly five years, Joe has recovered splendidly from his tongue cancer treatments,
and there have not been any recurrences. This update refers to another, unrelated cancer that some
of you may not be up-to-date on.
About three and a half years ago, just after Joe¹s tongue cancer treatments ended, he had a deep
melanoma removed from his back, and a sentinel node biopsy. All appeared clear but, because the
melanoma had been so deep, the docs at Dana-Farber recommended that he get scanned there
regularly, for three years, to make sure.
This past spring‹just at the three-year mark‹a scan showed a small nodule on his lung that turned
out to be a metastatic melanoma that had spread through his blood. It was successfully removed
with laparoscopic surgery. Unfortunately, this is a stage-four cancer whose only treatment is surgery.
However, the fact that it was a single tumor was good news, since multiple metastatic melanomas are
common. Also, Joe has been giving himself injections of a medicine which is a synthetic form of GM-CSM
(naturally released by the body) that increases his T-cell count because research suggests that this could
help his body to fight off future tumors. He has also been getting cat scans at Dana-Farber every three months.
Last week, when we went to Dana-Farber for Joe¹s three-month scans, they revealed a bowel
overlap (medical term: intussusception). He had been having intermittent stomach cramps for a
few weeks. Emergency surgery, including a small bowel resection (they removed about 5² of his
small intestine), was performed at Brigham & Women¹s later that day. There was a small tumor,
which turned out to be a melanoma, that had caused the bowel overlap. The tumor, along with a
section of his small bowel, was removed and the bowel was put back together. There were no complications
and the surgeon was pleased with the results. We came home last Monday and Joe has been recovering quickly.
We go for a surgical follow-up in a few weeks, and will also talk with his oncologist at Dana-Farber to see
what¹s next regarding the GM-CSM injections.
We¹re very happy to be home and Joe is in good spirits. Keep those good thoughts and prayers coming
our way.
Regina & Joe
Dear
Friends,
We learned on January 4 that when you have metastatic melanoma, you hope
for the best and plan for the worst. So on Wednesday of this week, Joe
and I, along with our daughter Debra and grandson Jorge, packed
overnight bags before we headed off to Dana-Farber for Joe's scheduled
three-month CT scan.
The good news is: We did not have to stay in Boston for emergency
surgery as we did in January. However, the scans did detect three tiny
nodules—each about the size of a grain of sand—in Joe's lungs. Yes, this
means that the melanoma continues to look for new spots in which to set
up shop in Joe's body. But the tumors are so small that after an
extended discussion with Joe’s oncologist—Dr. Stephen Hodi, a leading
melanoma researcher—we decided to go another six weeks and get a
follow-up scan to see if the nodules have changed in size before
deciding on a treatment. This will also give Joe time to recover from
his brain radiation.
Joe’s next set of scans, both brain and CT, will be on May 31. At that
time, the docs will be looking to make sure the disease in Joe’s brain
is stable, will assess the size of the tumors in his lung, and will talk
to us about further treatments. Last Wednesday, Dr. Hodi suggested that
an oral chemotherapy called Temodar, which has had some promising
results in clinical trials of advanced melanoma, might be the next step.
The only bad news—a relative term as we continue to redefine a "new
normal”— is that Joe can't drive for another month or two. The concern
is that there’s a small risk of seizures due to swelling and irritation
from the brain radiation.
Meanwhile, we had a great time at our celebration of life party on April
9. Go to:
http://Orbit.unh.edu/cancer
Click “celebration” and then “memories” for party scenes, and “melanoma”
for Joe’s most recent additions to the educational part of the site.
Also, I’m enclosing an article published in the UNH student newspaper
last week. Joe continues to inspire us all.
We’ll write again after the May 31 checkup. Until then, no news is good
news. We hope to take a little time off for R&R during the next month
and enjoy springtime.
Love,
Regina and Joe
Regina
Baraban
<rbaraban@comcast.net>
wrote:
June
2, 2006
Dear
Friends,
If
you
have
been
getting
these
“Friends
of
Joe”
updates,
please
skip
to
the
next
paragraph.
If
you’re
new
to
the
list,
here’s
a
quick
summary.
About
three
and
a
half
years
ago,
while
recovering
from
tongue
cancer,
Joe
had
a
deep
melanoma
removed
from
his
back.
This
was
completely
unrelated
to
the
tongue
cancer.
We
thought
he
was
clean,
but
in
fact
the
melanoma
had
spread
to
his
blood.
In
spring
of
2005,
a
small
melanoma
tumor
was
discovered
in
his
left
lung
and
in
January
a
tumor
was
discovered
in
his
bowel.
They
were
both
successfully
removed
with
surgery.
Then,
the
week
of
Feb
20,
a
brain
scan
revealed
six
tumors
in
his
brain.
He
was
treated
in
March
with
two
types
of
radiation
to
his
brain:
stereotactic
radiosurgery
that
zapped
the
visible
tumors
with
high
doses
of
radiation,
and
lower-dose,
whole
brain
radiation.
The
goal
was
to
halt
the
growth
of
the
tumors
and
buy
a
little
more
time.
Then,
CT
scans
in
mid-April
showed
three
very
small
spots
on
his
lungs
as
well.
Since
then,
we
have
been
watchfully
waiting
and
giving
Joe
time
to
rest
and
recover
from
his
treatments.
Joe
maintains
a
Web
site
about
his
cancer
journey
at
Orbit.unh.edu/dhm/cancer
We
got
good
news
on
Wednesday,
during
Joe’s
follow-up
appointments
and
scans
at
Brigham
&
Women’s
and
Dana-Farber
in
Boston.
1.
The
tumors
in
Joe's
brain
have
remained
stable—some
even
appear
to
have
decreased
in
size.
There
is
some
swelling
around
the
tumors,
which
is a
normal
side
effect.
2.
The
spots
in
Joe's
lungs
have
shown
little
or
no
growth.
One
in
his
right
lung
increased
by 1
mm.
3.
No
additional
tumors
were
seen
in
the
scans.
4.
Joe
has
permission
to
drive,
which
he
hasn't
done
since
his
first
radiation
treatment
in
March.
Thank
you
all
who
have
helped
out
with
transportation!
5.
Our
Dana-Farber
oncologist,
Dr.
Hodi,
again
presented
us
with
the
option
of
watchful
waiting
or
starting
a
chemotherapy
treatment
called
Temodar
that
can
be
used
for
a
limited
time.
He
stressed
that
this
is a
drug
that
we
might
want
to
hold
in
our
arsenal
for
when
the
melanoma
is
active
and
we
really
need
it.
So,
with
that
in
mind,
we
again
chose
the
watchful
waiting
route
and
will
go
back
to
Boston
for
the
next
set
of
scans
on
August
2.
We’ll
update
you
after
August
2.
Until
then,
have
a
wonderful
summer.
Love,
Regina
and
Joe
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These, and other updates generated hundreds of supportive and informative emails
from our friends and family. Their thoughts and prayers were every bit as
important in my battle as the best medical treatments in the world.
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